22.-23. 09. 2017. konferencija AGORA, Zagreb, hotel Westin


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Objavljeno: 18.09.2017.

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22.-23. 09. 2017. konferencija AGORA, Zagreb, hotel Westin

Od  22. do 23. rujna 2017.  u zagrebačkom hotelu Westin se održava  6. konferencija AGORA.  Riječ je o  platformi organizacija oboljelih od reumatskih bolesti u južnoj Europi. Agora je utemeljena u jesen  2011. godine  u Valeti, glavnom gradu Malte. Ciljevi Agore su:

–lobiranje (da organizacije osoba s reumatskim bolestima imaju snažniji glas, kako na nacionalnom, tako i na europskom nivou i da sudjeluju u procesu donošenja odluka),

–umrežavanje (da se osnaži i pomogne formiranje organizacija pacijenata),

–podizanje svijesti (da se promijene  kulturološki stavovi prema reumatskim i mišićno-koštanim bolestima i da bolesnici postignu  što veću kvalitetu  života) .

 

Članovi Agore su:

  • Hrvatska: Hrvatska liga protiv reumatizma ( Hrvatska),
  • Cyprus League Against Rheumatism (Cipar),
  • APMAR (Italija),
  • ELEANA (Grčka),
  • The Arthritis Foundation of Crete (Grčka),
  • Liga Reumatoloxica Gallega (Španjolska,
  • Conartritia (Španjolska),
  • Liga Reumatologica Catalana (Španjolska,
  • ARAM (Malta),
  • Romanian League Against Rheumatism (Rumunjska),
  • Bulgarian Organisation for patients with Rheumatic Diseases (Bugarska),
  • ORS (Srbija),
  • NVO RAM-Association for helping people with rheumatic diseases (Crna Gora),
  • ACS France (Francuska),
  • ROMATURKA (Turska)

 

P R O G R A M

6. konferencija AGORA, 22-23.09.2017. Zagreb, hotel Westin

Personalizirani pristup, reumatske bolesti i kvaliteta života

("The personalised approach to persons with RMDs and Quality of life")

 

 

 

PETAK 22.09.2017.

11:00-11:10

Pozdravni govor zemlje domaćina 6. Agora konferencije _ Frane Grubišić, MD, PhD, predsjednik Hrvatske lige protiv reumatizma

 

11:10-11:20

Prezentacija - 25 godina Hrvatske lige protiv reumatizma_ Prof. Simeon Grazio, MD, PhD

 

11:20-11:30

Prezentacija -Međunarodne aktivnosti Hrvatske lige protiv reumatizma_ Hana Skala Kavanagh, MD, & Miroslav Marić

 

11:30-12:00 

Agora i njeni međunarodni partneri: EULAR, GAfPA, EPF_ Souzi Makri & Elena Tsigki

 

12:00-12:10

Uvod u konferenciju: ciljevi, radionice_Elena Tsigki

 

13:20-13:50

Keynote Presentation 1: "Individualized approach to rheumatology"

Presentation A: "Personalized medicine or precise medicine in rheumatology"_Frane Grubišić, MD, PhD,

Presentation B: "Occupational therapy in rheumatic and musculoskeletal diseases"_Ivan Habulin (occupational therapist)

 

14:05-15:15 /15:45- 17:00

Workshop A: "How to achieve an individualized model for treating a person with RMDs? Teamwork and rehabilitation approaches in Rheumatology" _Mateia Znika (Physiotherapist), Julija Tenodi MarakoviĆ (Specialized nurse for adult rheumatology), Spyroula David(Psycholotherapist)-Moderators: Sebastian Micallef & Eva Kritza   

 

14:05-15:15 /15:45- 17:00

Workshop B: "The people behind the curtains: the role of informal carers and nurses" [Structure: Panel discussion]_ Brankica Rimac (specialized nurse for adult rheumatology, Francisco Javier Carreira Roca (patient, LIRE) Moderators: Victoria Romero Pazos

 

14:05-15:15/ 15:45- 17:00

Workshop C: "Patients involvement in EMA activities: creating patient awareness on medicines' safety"_Maria Mavris (EMA)

 

14:05-15:15 / 15:45- 17:00

Workshop D: "Starting a family and RMDs: embracing your sexuality and facing facts (pregnancy and fertility) when considering making a family"_  Prof. Krunoslav Kuna, MD, PhD and Ivan Bolanča, MD, Mirna Sentić, MD, Primarius, Codruta Zabalan, Moderator: Dr. Simeon Grazio MD, PhD

 

17:00-18:00

Feedback to the plenary: Open discussion Moderator: Hana Skala Kavanagh & Boryana Boteva

CHAIRS SESSION 1: Marie-Therese Camenzuli

CHARIS SESSION 2: Katerina Koutsoyanni

 

 

SUBOTA 23.09.2017.

09:30-10:00

Keynote Presentation 2 "Quality of life for people with RMDs"_  Prof. Gorka Vuletić Mavrinac (Clinical psychologist)

 

10:00-10:20

"Quality of Life for people with Rheumatic Conditions in Europe"_ Maarten de Wit

 

10:25-11:40 /12:00- 13:15

Workshop E: "The emotional and psychological aspect of living with RMDs" _Prof. Gorka Vuletić Mavrinac (Clinical psychologist) Frane Grubišić, PhD, MD (co-chair)

 

Workshop F: "Challenges people with RMDs face in the workplace and ways to improve the communication with the employers" _ Spyroula David (Psychologist), Nikolas Makris (HR specialist), Boryana Boteva (employed patient) & Cathy van Riel (unemployed patient) Moderator: Marie-Therese Camenzuli & Maarten de Wit

 

Workshop G: "The role of patient organisations in helping people with RMDs achieve a better quality of life (and find their way)"_ Souzi Makri and EvaKritza

 

Workshop H: "Be active today! How to use adaptive forms of exercise to be more active and healthy"_Andreas Iacovou (Pool instructor), Vicky Aristidou (Yoga instructor) & Antun Andreić (Tai Chi instructor, Remisjia)

 

14:15-15:30

Abstract presentations session /

  • "A New Way of Rising Musculoskeletal Awareness: Novacode/Romaturka"_  Romaturka (Turska)
  • "A smiling childhood: A social window for families with children affected with chronic and rare rheumatics pathologies"_ APMAR (Italija)
  • "Does your knee hurt? - A Campaign for disease awareness and early diagnosis of non-traumatic knee pathologies"_ LPCDR
  • "Working together"_ The Arthritis Foundation of Crete
  • "REUMAPPA"_ LIRE

 

15:35-16:35

"Treat to Target": How can Agora use this tool to empower patients in achieving a more patient-centered care" _Maarten de Wit & Elena Tsigki/

 

16:35-17:10

Feedback to the plenary: Open discussion Moderator: Ivan Habulin & Elena Tsigki

 

17:10-17:20

Closing Remarks and farewell _New and past Chairperson of Agora/

CHAIRS SESSION 1: Sebastian Micallef

CHAIRS SESSION 2: Boryana Boteva

FUNBOX

Život 360 *Humor* Edumar * Mjerači

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